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Psoriasis and Psoriatic Arthritis
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So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻
Be keen to hear from anyone else who has it what they are on/has tried and helped.
Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. |
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We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding.
He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking.
Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔 |
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By (user no longer on site) 25 weeks ago
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I’ve had a patch on my right shin and a bit on each knee. For me stress or anxiety doesn’t help and having autistic traits becomes something of a vicious circle.
On bad days it can appear under some of my nails…it gets me down and depressed at times. |
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"We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding.
He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking.
Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔 "
I feel you with that, I came of the methotrexate as it just made me ill and kept having to get called into hospital for tests. It has taken years where I am to even get started on the biologics and now I'm on to my 2nd one. First helped with the arthritis but not the skin.
Sorry to hear someone asked him that about his skin, it seems to be what most idiots pick on here when I get a shitty message.
Hope you get the biologics sorted soon ☺️ |
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"I’ve had a patch on my right shin and a bit on each knee. For me stress or anxiety doesn’t help and having autistic traits becomes something of a vicious circle.
On bad days it can appear under some of my nails…it gets me down and depressed at times."
I get it under my nails too, once described it as feeling like my nail beds are being stabbed to someone at work and they just looked confused at how it could hurt.
Hopefully you have some good friends (fab or otherwise) to help you through it ☺️ |
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"We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding.
He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking.
Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔
I feel you with that, I came of the methotrexate as it just made me ill and kept having to get called into hospital for tests. It has taken years where I am to even get started on the biologics and now I'm on to my 2nd one. First helped with the arthritis but not the skin.
Sorry to hear someone asked him that about his skin, it seems to be what most idiots pick on here when I get a shitty message.
Hope you get the biologics sorted soon ☺️"
A dickhead will always find something to be nasty about. I hate that single women get these shitty responses (usually because they got rejected!) on here. Hope you reported him x |
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"We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding.
He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking.
Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔
I feel you with that, I came of the methotrexate as it just made me ill and kept having to get called into hospital for tests. It has taken years where I am to even get started on the biologics and now I'm on to my 2nd one. First helped with the arthritis but not the skin.
Sorry to hear someone asked him that about his skin, it seems to be what most idiots pick on here when I get a shitty message.
Hope you get the biologics sorted soon ☺️
A dickhead will always find something to be nasty about. I hate that single women get these shitty responses (usually because they got rejected!) on here. Hope you reported him x"
Didn't think I could report for that? They took themselves out anyway profile was gone a week later.
Either way, psoriasis flare up or not I'm still here hoping to find the decent ones 🤞🏻 |
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I've witnessed my dad for 28 years deal with this, he's dealt with it for 60 years, he's had acid baths, every procedure possible, he stopped one thing
Dairy products... Dairy products almost took my dad to suicide, please try cut milk. Cheese, anything dairy out of your life and watch the difference |
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Also if anyone needs any advice any questions on psoriasis please message me, I've witnessed my dad for many years, I've seen him fight and try everything possible for years... At 63 he's now clear so if I can give anyone any advice as my dad wouldn't wish it on his worst enemy... Please message me |
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By (user no longer on site) 25 weeks ago
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I really feel for all of you who suffer with this. I’ve had mild eczema most of my life and hate it when it flares up in visible areas. I find it can be very depressing, uncomfortable and embarrassing.
Wishing you all good health and hope it doesn’t get in the way of your fun times! |
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By *akedMMan 25 weeks ago
Witney |
I get it on my knees, elbows. Scalp. Penis, and my anus. I don’t use cream, use Dead Sea salt in the bath. Sometimes oats in a mesh bag along with alove Vera I have a couple of plants , urs Sannex bath, shower gel , Ecover washing liquid, and when it’s warm and sunny I get naked in my garden.At the moment it’s really good 👍🏻 no scale at all  |
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By *D1965Woman 25 weeks ago
watford |
"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻
Be keen to hear from anyone else who has it what they are on/has tried and helped.
Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. "
Hi ive also got both.. im now on Pyzchive ( ustekinumab) 90mg every 12 weeks. Has helped with the arthritis. Ive tried multiable things over the years.still have bad days but nowhere near as bad so yes it helps.. the psoriasis ive lost count of different creams but best by far is Enstilar foam wish i found it years ago..speak to your dr but you have to keep doing it but it works.. and to cover ip i use a finish concealer from mac and they get the best match for your skin type and blends right in.. they also keep the details of item with your details so you can go in and get more. Hope this helps need anymore info feeel free to ask. Good luck |
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I’ve suffered for years trying everything I swear by enstilar spray it’s excellent at getting rid of the scales I tend to use the sunbed which helps keep it under control but when it flares I get soo self conscious luckily we’ve not came across anyone that’s said anything about it x |
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Thanks everyone, I don't know anyone else in person who has either so it is good to hear from you all 😊
For anyone concerned, I've been sewing a doctor and a dermatologist for this since I was 5 so all good there, just funny how something works for so long then it doesn't.
Just been feeling really conscious about it these past few weeks as the flare up is so bad.
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Hi all, ive had psoriasis since i was 14 , creams of all sorts , methotrexate for many years which just suppressed it for a while , still bled and still got the dry skin until , i was put forward to try the taltz injection once a month , omg for me all red patches and scales have now dissapeared, |
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By *ing8435Man 24 weeks ago
Worcestershire |
I've had psoriasis since I was 7, I've had multiple hospital stays as a child, and one as a 20+ year old. Had a good stint on methotrexate for about 8 months. and pretty much have had something on show all the time.
I did 25 years in the army, (where the army dematolgist said I would never promote.). I left the army at the highest rank without commissioning, proving them all wrong.
And 3 months after leaving, I was completely clear.... turns out the stress of the army was flaring my skin up.
I now use Enstillar spray for my minor flares. I hate the ointments, and the creams dissapear to quickly. so this meets half way. |
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I’ve had psoriasis since a kid and psoriatic arthritis since in my 20s.
I’m on methotrexate and adalimumbab which pretty much keeps everything at bay.
Elbows & on my scalp are where it gets me the most, luckily not had a major flare up for a while though.
It’s not affected my swinging at all, only my fwb has seen me when it’s flared though. If it’s really bad, I’ve used dovobet to calm it in run up to events etc x |
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I use it and have never had any problems with it. I’d give it a try and see if it works for you.
Some it does, some it doesn’t. I’ve literally never felt sick whether taking it in the morning or night etc. but if I take it in the morning, I am exhausted at night. |
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By *eyeYCouple 24 weeks ago
Nr Leicester |
D has psoriasis and it never ceases to impress me at clubs and even in Cap how he owns it..
We've had the comments that I should take it easy with the paddle etc (unlikely 😉)
People in vanilla life making assumptions he doesn't wash enough or is an alcoholic as his face reddens occasionally in areas.
He has had and now refuses the steroid ointments, suffered skin thinning and now uses coconut oil for longer easing of flair ups, but as a poster above mentioned his is stress cortisol related we feel and we're looking at ways to help that ATM.
His worst thing is in his ears, where you are damned if you do, dammed if you don't with trying to manage it while avoiding ear infections, which are quite common.
To me he's still fucking sexy!! 😈🔥
He actually thanks it in a way as people don't believe he's any older than me, basically because he can't remember not being able to get away without moisturising, but it can really affect people's confidence and I think that's probably worse than the discomfort for many.
We'll be looking at some of the contributions with interest and thank you all for the honesty!
Keep naughty 😘 |
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻
Be keen to hear from anyone else who has it what they are on/has tried and helped.
Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. "
Like you had it since childhood as you know they try all sorts of lotions and potions been in hospital many times.
The light treatment helps for short while but comes back.
I was on tablets for long time cannot recall name tbh then they put me on injections and generally help downside are nausea the injections are also used for chemo
Currently on WEGENSY or name like that
Psoriatic arthritis is horrible affecting my fingers badly and couple of toes |
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"I've witnessed my dad for 28 years deal with this, he's dealt with it for 60 years, he's had acid baths, every procedure possible, he stopped one thing
Dairy products... Dairy products almost took my dad to suicide, please try cut milk. Cheese, anything dairy out of your life and watch the difference "
My partner went fairy free for over 2 years it didn't work with him |
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"I also suffer with this, mostly on arms and knees. I'm very conscious of it and it does get me down. Due to start Methotrexate soon but now having second thoughts"
Sorry was supposed to be responding to this
I use it and have never had any problems with it. I’d give it a try and see if it works for you.
Some it does, some it doesn’t. I’ve literally never felt sick whether taking it in the morning or night etc. but if I take it in the morning, I am exhausted at night. |
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I had quite bad psoriasis when I was younger, I found loosing weight and avoiding to much dairy has worked wonders for me. Im now in "remission" I get the odd patch but nothing steroid creams cant sort. |
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Mr here. I had no skin issue until I hit 30. Then psoriasis came in my hair, ears, elbows, back, groin, knees and shins. It took two years for the GP to come up with the psoriasis diagnosis, they even had an underlined note stating that it was "not psoriasis".
I have steroid creams and moisturisers. They don't fix the issue but they keep it at bay. My hair cleared up, possibly made easier by shaving my head. The groin and butt crack are the worst for me. Sex has been off the cards a few times.
I was self conscious with it in hair as people assume it was dandruff or even ringworm |
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Totally with you on the methotrexate, it's a horrible med, wipes you out and horrible nausea, I was prescribed it for arthritis but took my self of it, managed to get on Amjavita which is brilliant no side affects and no joint pain, I believe it also works on skin conditions.. enquire and see what they docs say. |
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"I also suffer with this, mostly on arms and knees. I'm very conscious of it and it does get me down. Due to start Methotrexate soon but now having second thoughts
Sorry was supposed to be responding to this
I use it and have never had any problems with it. I’d give it a try and see if it works for you.
Some it does, some it doesn’t. I’ve literally never felt sick whether taking it in the morning or night etc. but if I take it in the morning, I am exhausted at night."
Ty x |
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I have found this thread very interesting. I had psoriasis for as long as I can remember. Then 10 years ago my brother died suddenly I devastated we suffered extreme children abuse as children together, he was my witness as I was his. At this time my uncle our abuser contacted the family saying he wanted to attend the funeral! I didn't want that nor did my late brother partner. We conceded if he wanted to pay his respects then do so but then fuck off. He attended the funeral but gloated and didn't seem at all remorseful about his abuse of us. I drank too much and the next morning report the ra£e and abuse of 40 odd years ago. The police were supportive and the CPS prosecuted, eventhough the msin victim was dead. He eventually received 14 yrs in jail. What surprised me and still does was that psoriasis on both calfs of legs had completely cleared in about 18th months from my brothers death to sentencing. I so glad it has I have cut ties with my family now as they were not at all supportive . Just not sure of the reasons of the clearance. |
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"I have found this thread very interesting. I had psoriasis for as long as I can remember. Then 10 years ago my brother died suddenly I devastated we suffered extreme children abuse as children together, he was my witness as I was his. At this time my uncle our abuser contacted the family saying he wanted to attend the funeral! I didn't want that nor did my late brother partner. We conceded if he wanted to pay his respects then do so but then fuck off. He attended the funeral but gloated and didn't seem at all remorseful about his abuse of us. I drank too much and the next morning report the ra£e and abuse of 40 odd years ago. The police were supportive and the CPS prosecuted, eventhough the msin victim was dead. He eventually received 14 yrs in jail. What surprised me and still does was that psoriasis on both calfs of legs had completely cleared in about 18th months from my brothers death to sentencing. I so glad it has I have cut ties with my family now as they were not at all supportive . Just not sure of the reasons of the clearance. "
I’m so sorry to read about the loss of your brother and for the abuse you both suffered. Absolutely amazing you felt able to report it and that CPS prosecuted - and he got the time he deserved! I’m sorry your family weren’t supportive - fuck them! Psoriasis can be triggered by stress, maybe the weight lifted meant your nervous system was able to settle down and the autoimmune issue cleared? Interesting! |
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By *ur1Man 24 weeks ago
Rochdale |
I started with psoriasis as a teenager, initially a couple of small patches on my knee and elbows which in my 20s had gone worse with patches on my shins, in and behind my ears, in my scalp, on my balls and then on my back and stomach. Doctors prescribed me all the usual treatments, coal tar ointments, steroids, different drugs which helped a little but never cleared it up. By my late 20s I was suffering badly with psoriatic arthritis, more trials of different drugs for a number of years until I was put on methotrexate. I was quickly taken off that as my blood tests weren’t good and finally was put on biologics. The arthritis had got that bad that I’d had to take time off work and I was getting to the point where I was worried I would have to give up work. I am now on a fortnightly injection of amgevita and within a month or two of taking it I improved unbelievably. The arthritis is now gone and I am completely clear of psoriasis. I still get the odd ache and pain but I put that down to the fact I am getting older and not to arthritis lol. Amgevita really has been a miracle drug for me and improved my life considerably. |
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"Totally with you on the methotrexate, it's a horrible med, wipes you out and horrible nausea, I was prescribed it for arthritis but took my self of it, managed to get on Amjavita which is brilliant no side affects and no joint pain, I believe it also works on skin conditions.. enquire and see what they docs say."
.
Methotrexate I was on for few years and despite the side effects it helped, however it became less effective and now on injections called Wezegny.
To compound this I had Sepsis and very lucky to be here and had numerous episodes since.
My immune system in effect looked any infection is a danger timing is key. |
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I've suffered since I was 13, it's ruined alot of aspects of my life in the past. Still some now. Currently using Enstiller foam which helps but soon comes back once I stop.
Currently on a auto immune suppressant also. 'Cyclosporine' was on methotrexate before that but kept going light headed and suffering vertigo!
Not a fun condition. Also gets in the way of enjoying this site at times!! |
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"I have found this thread very interesting. I had psoriasis for as long as I can remember. Then 10 years ago my brother died suddenly I devastated we suffered extreme children abuse as children together, he was my witness as I was his. At this time my uncle our abuser contacted the wanted to attend the funeral! I didn't want that nor did my late brother partner. We conceded if he wanted to pay his respects then do so but then fuck off. He attended the funeral but gloated and didn't seem at all remorseful about his abuse of us. I drank too much and the next morning report the ra£e and abuse of 40 odd years ago. The police were supportive and the CPS prosecuted, eventhough the msin victim was dead. He eventually received 14 yrs in jail. What surprised me and still does was that psoriasis on both calfs of legs had completely cleared in about 18th months from my brothers death to sentencing.
I’m so sorry to read about the loss of your brother and for the abuse you both suffered. Absolutely amazing you felt able to report it and that CPS prosecuted - and he got the time he deserved! I’m sorry your family weren’t supportive - fuck them! Psoriasis can be triggered by stress, maybe the weight lifted meant your nervous system was able to settle down and the autoimmune issue cleared? Interesting!"
Thank you for your reply, yes the weight was lifted I was able to see I had nothing to be ashamed about. The police and support groups were excellent in my case, so I am grateful for that. |
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By *SS38Man 24 weeks ago
Aberdeen |
I know some people that do have it and is of course affecting their confidence etc.
Some people claim that it's all to do with the gut health and foods which promote inflammatory response from the immune system.
I do believe that is the case, especially as most Gap's give you steroids creams just to make it look better...they cover the symptom, but never cure the cause. Try isolating foods, or go gluten, carb and lactose free for a couple of months...
All the best. |
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A long term psoriasis sufferer here. Had it for years. Tried various lotion and potions and creams. Nothing seems to shift. It keeps it from getting worse but doesn't seem to actually get better. Then I discovered holidays. Sun and UV. Want away 4 times last year . And the smaller less developed patches. Gone. The longer crustier patch if you like were better for a while. So much so. After chatting to the hospital and doctor I've been and purchased a UV machine so I can sit and zap myself at home. Defo seems to be working for me.. so far |
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"I also suffer with this, mostly on arms and knees. I'm very conscious of it and it does get me down. Due to start Methotrexate soon but now having second thoughts"
They monitor bloods very well on this so any changes and they pull you off the meds very quickly. Don’t think I lasted 1 week on methotrexate |
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You could consider a liver and gall bladder flush. Almost every person with a skin disease also has intestinal problems and impure blood. These are mainly caused by gallstones in the gallbladder and liver which can cause problems with the lymphatic system, skin and other dis-ease etc etc. Nothing to loose by trying it. ,🙏 |
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Mines tends to flare up when I'm stressed as i have a small patch on my chest but it's mostly on my elbows and shins.
When it comes to bedroom activities i try go with positions that don't involve me leaning on those areas if possible but if not make sure it's not long which means I'll switch positions |
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"A long term psoriasis sufferer here. Had it for years. Tried various lotion and potions and creams. Nothing seems to shift. It keeps it from getting worse but doesn't seem to actually get better. Then I discovered holidays. Sun and UV. Want away 4 times last year . And the smaller less developed patches. Gone. The longer crustier patch if you like were better for a while. So much so. After chatting to the hospital and doctor I've been and purchased a UV machine so I can sit and zap myself at home. Defo seems to be working for me.. so far"
Would you mind telling us make/model of the machine you bought please? I get some patches which are well controlled with betnovate. But l agree with you that sunshine is the best medicine I’ve found. Which gives a nice reason to visit a nudist beach.
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By *eijaWoman 23 weeks ago
City Centre |
Hey OP
I have had Psoriasis all my life and Psoriatic Arthritis the past 10 years...
My skin isn't bad anymore just my scalp on occasion but I'm in constant pain with my arthritis which I manage with over the counter meds. I have been prescribed many different meds over the years but find your body becomes immune to steroid creams etc over time.
The best natural cure (I have consistently found) as mentioned above is the sun. You are what you eat also...lots of foods can cause flare ups...dairy, wheat, tomatoes and peppers. Assessing your diet is worth a try.
Stress is a constant flare up factor too.
Get yourself on a Winter sun holiday...get to GC (sun on your bones and swinging if you want) Alternatively, investigate doing some UVB lamps in the hospital.
Best of luck!
B x |
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"You could consider a liver and gall bladder flush. Almost every person with a skin disease also has intestinal problems and impure blood. These are mainly caused by gallstones in the gallbladder and liver which can cause problems with the lymphatic system, skin and other dis-ease etc etc. Nothing to loose by trying it. ,🙏"
Don't you think that doctors dermatologists would recommend this? They haven't cause it's not been proven to work.
My partner has psoriasis and has had it since the age of 11 now 43 he has gone on numerous detox plans and cut fairy from diet nothing worked |
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"You could consider a liver and gall bladder flush. Almost every person with a skin disease also has intestinal problems and impure blood. These are mainly caused by gallstones in the gallbladder and liver which can cause problems with the lymphatic system, skin and other dis-ease etc etc. Nothing to loose by trying it. ,🙏"
LOL |
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When the liver is congested it's unable to do its job properly, including keeping the lymphatic system clear. There are many things the medical industry don't tell, they would loose customers if they did. Just because they haven't mentioned it doesn't mean it doesn't work does it? I used to get patches on my chest, legs and one arm, all gone, my daughter no longer has eczema which she's had since a child. It's up to you, keep listening to your GP etc that's obviously helped so much that your all taking pharma medication that isn't working and your all moaning about side affects. The liver and gall bladder flush uses no medication. Enjoy your suffering. |
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻
Be keen to hear from anyone else who has it what they are on/has tried and helped.
Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. "
Stress is a factor, use simple soaps and shampoo, expensive ones have to much perfume in which aggravates it. Apply moisturizer twice a day, rub a small amount in thoroughly. See a skin specialist not a GP it makes a world of difference. I was very bad in my twenties but now can easily control it, drugs do not work. Bath or shower daily and steer clear of strong aftershave and washing powder..I use SMOL. |
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I am prescribed Enstilar and it works well for me
Definitely helping me fight the battle with a patch on my right shin that I’ve had for goodness knows how long now
I know every case is different but if anyone hasn’t used this then definitely ask the doctor for it.
In saying that the doctor didn’t prescribe this for me I only got it after going to a skin specialist at the hospital for a better diagnosis as the doctors would only give me the usual soaps n creams i basically told the doctors I’ve had enough after trying everything I wanted to see someone with more specific skills than a gp for this |
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"When the liver is congested it's unable to do its job properly, including keeping the lymphatic system clear. There are many things the medical industry don't tell, they would loose customers if they did. Just because they haven't mentioned it doesn't mean it doesn't work does it? I used to get patches on my chest, legs and one arm, all gone, my daughter no longer has eczema which she's had since a child. It's up to you, keep listening to your GP etc that's obviously helped so much that your all taking pharma medication that isn't working and your all moaning about side affects. The liver and gall bladder flush uses no medication. Enjoy your suffering. "
I’m doing just fine with my meds, thank you for asking  |
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By *evils PuddingCouple 23 weeks ago
the pub or in the nude in Paisley |
Following this thread. Finding it quite interesting, didn’t realise so many suffer like myself. Nothing seems to work for me & it’s making me very self conscious because it’s around my groin and breasts. The only thing I have a handle on really is my scalp. Have an auto immune health condition too so that’s not helping either.  |
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Hi im also a long time sufferer but iv found a few tricks that knock back the flare ups..finding out what causes them is a must and avoid that food drink..detox the body with dandoline tea..anti toxin anti cancer..and also wormwood and clove tea anti parasitic..these help keep the inside clean.. dovobet gel is a steorid cream that heals the skin and works great to reduce itch and sore skin..and UV light treatment too is great..but if using a sunbed only use like 3 mins at a time over a few days..its great and it works brilliant for me but if sensitive will burn if you stay on it too long. Slow and steady at the start..hope it helps |
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By (user no longer on site) 21 weeks ago
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Had UV treatments for a few weeks which seemed to help. But it’s only a temporary measure. Had it for so long now I couldn’t really care what others think. I used to wear hats, jeans and jumpers in the summer as I was so self conscious.
Got appointment with hospital to discuss methotrexate. So interesting to hear how it’s effecting others.
Heard there were injections available that also help. |
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"Had UV treatments for a few weeks which seemed to help. But it’s only a temporary measure. Had it for so long now I couldn’t really care what others think. I used to wear hats, jeans and jumpers in the summer as I was so self conscious.
Got appointment with hospital to discuss methotrexate. So interesting to hear how it’s effecting others.
Heard there were injections available that also help."
Methotrexate has been a game changer for my other half you have to have regualblood teat to check liver function you need to watch what you drink and stay out of the sun or make sure you wear a strong sun cream if you do go out in it.
His body is now at least 95% clear of psoriasis |
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By (user no longer on site) 21 weeks ago
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"Had UV treatments for a few weeks which seemed to help. But it’s only a temporary measure. Had it for so long now I couldn’t really care what others think. I used to wear hats, jeans and jumpers in the summer as I was so self conscious.
Got appointment with hospital to discuss methotrexate. So interesting to hear how it’s effecting others.
Heard there were injections available that also help.
Methotrexate has been a game changer for my other half you have to have regualblood teat to check liver function you need to watch what you drink and stay out of the sun or make sure you wear a strong sun cream if you do go out in it.
His body is now at least 95% clear of psoriasis "
Just been prescribed this. In terms of alcohol did it change the consumption much? |
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Enstilar works best for me . The Fuerteventuran sun also helps but I’m not there often enough . I’ve also done the 10 week , three times a week , light treatment at the hospital and that completely clears me for around 6 months . I’ve done that three times over the years but it does come back with a vengeance. But as I said Enstilar has been the best |
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"Had UV treatments for a few weeks which seemed to help. But it’s only a temporary measure. Had it for so long now I couldn’t really care what others think. I used to wear hats, jeans and jumpers in the summer as I was so self conscious.
Got appointment with hospital to discuss methotrexate. So interesting to hear how it’s effecting others.
Heard there were injections available that also help.
Methotrexate has been a game changer for my other half you have to have regualblood teat to check liver function you need to watch what you drink and stay out of the sun or make sure you wear a strong sun cream if you do go out in it.
His body is now at least 95% clear of psoriasis
Just been prescribed this. In terms of alcohol did it change the consumption much?"
He avoids spirits and maybe has a few beers now and them |
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I have had Guttate psoriasis for maybe 30 years now and to be honest I don't worry about it too much as stress can bring it on a bit.
I use Dovobet if really bad but I have found E45 Itch relief cream works really well on mine which is non prescription. |
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I was diagnosed at 27. Told it was the hormone imbalance from having a baby (3years prior.)
I was head to toe and worked with the public so unsolicited advice was constant, as was the judgement. Enstillar and Light treatment worked to take the edge off. But overall biologics have saved me! You would have no idea I ever suffered and it’s 6years on. I recognise the start of a stress flare or find when my arthritis is bad my skin will flare too. But it’s manageable.
I truly believe over coming it has made my confidence grow 10 fold! Especially towards the lifestyle.
Hope you all find some support and methods that help you enjoy life! Xx |
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"We’re waiting for Ben’s first biological meds, a long wait list here after years of trying and failing treatments. Methotrexate worked to reduce it for a while but his organs didn’t like it so came off while we wait for the biologicals. It’s probably the worst it’s ever been atm, really painful - especially as he works outside. With that a lot of bleeding.
He’s really self conscious about it and someone asked at a club whether he’d be in the dungeon because they thought it was welts from a spanking.
Other than that it doesn’t affect us too much because I’m there bigging him up but it does affect his confidence and he’s conscious of flakiness 😔 "
I hope the biologics work for your hubby as well as they did on my daughter's severe eczema -completely cleared it. She also was on methotrexate before. |
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Just a wee update.
Thanks for everyone that responded on this thread, I've never actually known anyone with it before and was good to hear from you all.
I have not long taken my 2nd injection of wezenla and my skin is doing good. The plaques have gone, still have discoloration but I can't remember the last time my skin was this smooth! Not had any issues with the arthritis yet either and not any bad side effects (so far!)
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By *D1965Woman 20 weeks ago
watford |
"Just a wee update.
Thanks for everyone that responded on this thread, I've never actually known anyone with it before and was good to hear from you all.
I have not long taken my 2nd injection of wezenla and my skin is doing good. The plaques have gone, still have discoloration but I can't remember the last time my skin was this smooth! Not had any issues with the arthritis yet either and not any bad side effects (so far!)
"
Thats great news |
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"Happy to discuss the arthritis side privately.
What makes you believe you have the arthritis? Is it diagnosed by a consultant?"
As mentioned previously yes I am under the care of a specialist for both aspects of the psoriasis and the arthritis. |
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By (user no longer on site) 20 weeks ago
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There are quite a few different formulas out now,cosentyx is one, skyrizi another, but there are others, if you have been through the lotions, potions and tablets your specialist will advise you, been on biologics for a good few years now and went from acute plaque on every joint and torso and legs to a slight red spot about the size of a 2p on my ankle, keep trying as my specialist has said that can be effective for years and the beast that is psoriasis will find a way to break out again but there are different formulas that can be tried, I think it is 5 or 6 years on biologics for me now and no apparent side effects for me, the 3 different types tablets are now just a memory as they don't do your kidneys and liver any good as I'm sure you are aware if been on them for years, keep in contact with your specialist or the nurse dealing with your case and you will find the best option for yourself, keep at it as the biologics are changing and developing all the time |
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By (user no longer on site) 20 weeks ago
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On another note, since the biologics and my skin clearing patches do clear up, but have noticed for me that things like hagendaz ice cream will make the spot on my ankle itchy for a few hours, never noticed things like that before as with the plaque everywhere was just a constant itch, now cutting out as much sugar and sweetners as I can from foods and do notice a difference |
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By (user no longer on site) 20 weeks ago
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Good to hear different stories from different people. I’ve done the whole light treatment thing for years now. They’ve finally decided after 25 years to try a tablet. Hope it works |
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It’s Mr here - I’ve had psoriasis for at least 20years.
Have been on and off with the creams and steroid ointments - largely off I have to admit as they didn’t really make a sustained improvement.
Sun and sea always has a hugely positive impact as others have said.
Having recently now been diagnosed with psoriatic arthritis- just in my knees currently - I’m in my second week of methotrexate and Prednisolone.
Initially I was really concerned about the side effects. And my first week I was really washed out for the first 4 days with really bad headaches, sensitivity to light, and a feeling of nausea. Not surprisingly my appetite was zero.
I was dreading taking the second lot of 10 methotrexate tablets on monday. But I have to say I’ve not suffered the same side effects at the first week. Pretty much nothing in fact. I do notice i feel thirsty and I’m drinking a lot of water. And my teste for tea and coffee has left me completely which is probably not a bad thing. And importantly- my knees feel back to normal
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻
Be keen to hear from anyone else who has it what they are on/has tried and helped.
Like you I have had psoriasis since I was a toddler, quite a few years ago in Quest swingers club in Leeds and got chatting to a couple where the lady suffered with Psoriasis so had good natter about it because it was good to know I was not only swinger with it and we had some rumpy pumpy and so glad we met.
On and off for years had been hospitalised with it.
Currently doing am on injection of Wesegny and clear get the odd bit on skin.
As for psoriatic arthritis that is horrendous both feet and toes abd couple of fingers each hand affected.
Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. "
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What I find works is a healthy diet. Cut out sugar, alcohol, cut out dairy and processed food. Might seem hard at the start but it works wonders for your gut (which helps your skin). Aloe Vera juice helps too. |
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By (user no longer on site) 18 weeks ago
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Started methotrexate literally to tonight. Fingers crossed it does something. It’s not been bad for a few years now. But just recently started getting a few patches on the back of my calfs.
Elbows and knees are just standard parts to have for me.
I remember when it first started I would leave the house unless I was fully covered. Hat and all. Even in the summer.
Yet to see if it effects meets on here as I haven’t had any 😂 |
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Been on a small dose of methotrexate for 4 years. 7.5mg per week. Keeps mine at bay. Before that thought my sporting days were over but with a healthy diet and the meth I'm able to still gym and run. An alcohol filled weekend or too much sugar fatty foods will flare me up. |
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I was in humira for about 2 years, had to take it every 2 weeks and just left me feeling run down all the time as I'd only be getting g back to myself and I'd have to take it again and if I missed a dose due to being unwell I'd flare up, on tremfya now and they said the side affects are the same but it's every 8 weeks so I said I'd give it a go, it's amazing, don't feel run down after it and my skin is so much better now I can comfortably wear a black top now |
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I got psoriasis during the first lockdown with covid. Stress related i think as i didnt know what was going to happen to my job.
Ive found screams, lotions and potions worked but only if I kept at it.
Recently lost 9 stone via mounjaro in 14months. Ive cut my sugar down dramatically and ive not had a flare since, fingers crossed as i say this haha x |
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I've had severe eczema since i was born. The worst parts have migrated over my body of the years, back, face, arms, legs, body ... then settled on my hands about 16 years ago and can get extreme.
My current situaton is that i have tried every available drug/cream/puva/herbal/concoction known to man and nothing ever worked.
I got given an injection called a Kenalog injection which was absolute magic .. everything cleared up in 2 days.
I went back the hospital made up and asked to just keep getting that and they told me i will never get it again as it usually used as an end of life medication.
I see some people tried methotrexate which did not work for me .. then all of a sudden i was offered a methotrexate injection instead ... after a few weeks this started to work and the open sores on my hands closed, i then just maintined with moisturisers etc.
As i've had this since i was born, I've been to so many medical appointments and done endless research i feel like an expert ha!
I am currently in the middle of building a new app for eczema/psoriasis which will contain a "communinty" where people can speak with others about their experience .. amongst alot of amazing features.
So if anyone wants to ask any questions about tablets/injections send me a DM as i've been on them all.
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"Started methotrexate literally to tonight. Fingers crossed it does something. It’s not been bad for a few years now. But just recently started getting a few patches on the back of my calfs.
Elbows and knees are just standard parts to have for me.
I remember when it first started I would leave the house unless I was fully covered. Hat and all. Even in the summer.
Yet to see if it effects meets on here as I haven’t had any 😂 "
Fingers crossed for you with the methotrexate. I’m on week 3 of it and I’ve been fine.
Week 1 was awful but I begin to wonder if that was more because I maybe picked up one if the many bugs that seem to have been doing the rounds. Weeks 2 and 3 have been absolutely fine. Yet to gave results of blood tests to see how kidneys and liver are coping.
My psoriasis has stayed pretty clear we it’s little zero base and zero dovobet. And my knees ( psoriatic arthritis there being the reason for the medication) has completely cleared up. |
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Fingers crossed it works for you, love hearing stories about it clearing up for people.
I don't think people without it understand how painful it can be. When i have mine on my hands it stings like fuck just getting water on it.
When i get an itch I always say the only way i can describe the feeling is it's like your bone is itchy and you cant quite get the itch.
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I like the thread iv been living with arthritis since I was 18 in my finger tips toes knees and back been on so much medication over the year tablets injections trial injections and they do work for a few months then they stop I'm sorry to say this but I have 420 and it helps so much with it I got to the point I was sick of taking tablet x |
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"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻
Be keen to hear from anyone else who has it what they are on/has tried and helped.
Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. "
I’ve been on Imraldi for nearly six years - you wouldn’t know I had it, and I had severe psoriasis before that. My right arm was one giant plaque (or looked it anyway)
Benepali worked for about a year, Stelara wasn’t effective enough |
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"Also if anyone needs any advice any questions on psoriasis please message me, I've witnessed my dad for many years, I've seen him fight and try everything possible for years... At 63 he's now clear so if I can give anyone any advice as my dad wouldn't wish it on his worst enemy... Please message me "
anyone else know if this is true, I hope not because I love dairy, but if giving it up got rid of my psoriasis I'd give it up |
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"D has psoriasis and it never ceases to impress me at clubs and even in Cap how he owns it..
We've had the comments that I should take it easy with the paddle etc (unlikely 😉)
People in vanilla life making assumptions he doesn't wash enough or is an alcoholic as his face reddens occasionally in areas.
He has had and now refuses the steroid ointments, suffered skin thinning and now uses coconut oil for longer easing of flair ups, but as a poster above mentioned his is stress cortisol related we feel and we're looking at ways to help that ATM.
His worst thing is in his ears, where you are damned if you do, dammed if you don't with trying to manage it while avoiding ear infections, which are quite common.
To me he's still fucking sexy!! 😈🔥
He actually thanks it in a way as people don't believe he's any older than me, basically because he can't remember not being able to get away without moisturising, but it can really affect people's confidence and I think that's probably worse than the discomfort for many.
We'll be looking at some of the contributions with interest and thank you all for the honesty!
Keep naughty 😘"
D with you buddy, the ear are fucking annoying. All the best 👊 |
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Have any of you tried the carnivore diet, which is a diet consisting of only eating meat, butter eggs and no carbs at all, it totally eliminates all ultra processed foods and has been know to work miracles for people with psoriasis and other auto immune conditions?
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By *eijaWoman 7 weeks ago
City Centre |
"Also if anyone needs any advice any questions on psoriasis please message me, I've witnessed my dad for many years, I've seen him fight and try everything possible for years... At 63 he's now clear so if I can give anyone any advice as my dad wouldn't wish it on his worst enemy... Please message me
anyone else know if this is true, I hope not because I love dairy, but if giving it up got rid of my psoriasis I'd give it up"
You are what you eat..
Dairy, wheat, tomatoes and red peppers all can cause flair ups unfortunately!
Stay away from very processed food too!
B x |
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By *eijaWoman 7 weeks ago
City Centre |
"Stress is definitely a trigger for me. I mostly flare up with psoriatic arthritis issues rather than the actual rash.
"
Same. I currently have a psoriatic arthritis flair up it is so painful. Stress and humidity
B x |
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I had it for years, just a couple of small patches and nothing worked. I was often scratching, and it would bleed.
Then 2020 happened and I picked up Covid, I also had the vaccines. Weirdly, the psoriasis cleared up, but I am not sure what did it. I also had a mole type thing on the back of my leg and that went too.
I have noticed a small patch of it coming back again now, 5-6 years later but I will take that period of relief as a win. |
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By *ynecplCouple 7 weeks ago
Newcastle upon Tyne |
I developed psoriasis suddenly about eight years ago. The doctors prescribed Methotrexate which has kept it in check for the most part. I get sudden flair ups when stressed so for example I am in the middle of one right now which we are putting down to me changing jobs. Have been warned that eventually I might suffer from psoriasis arthritis but so far that has been kept at bay. Mr T |
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By *ifty69Man 7 weeks ago
north tyneside |
I've moved to Spain and find that the climate has made a huge difference to my condition, I've even refrained from taking prescription medication and just take anti inflammatory meds when I need too |
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By *960CWoman 6 weeks ago
Wakefield |
Ive had it since my early 20s
Enstiler has been great on my skin, but not so great on my scalp
someone suggested changing to goats milk, which I did try, just didn't like the taste
The downside of steroids is they thin your skin |
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By *uremuleMan 6 weeks ago
Carlow/Kilkenny |
Have both. Started getting very bad patchy skin about 4 or 5 yea4s ago. Was put on monthly injections which has totally cleared my skin. However, does have other effects. Skin on my penis is very tight and doesnt pull back this then cracks very easily which makes having fun very painful at times. |
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By *attieTV/TS 6 weeks ago
Nottingham |
"how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. "
Got to admit to canceling plans a few times myself due to flare ups of Psoriasis but in hindsight there's really no need, people are either into you or they're not, they understand the condition or they don't. The good 'uns stick around.
Been prescribed a few different remedies over the years including the Methotrexate but nothing seemed to make much difference so I quit the drugs and seem to get far less flare ups without them.
Choosing to reduce stress, eat well, hydrate and moisturise has been the best remedy for me. |
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Nice reading this and knowing my worries are not just with me and others have the same feelings.
I get it all over my body on a flare up but my hands feet scalp and elbows are my worst and can make me so conscious at times.
Had a guy tell me my skin was so soft I was like yh except my scales he was like f those your skin is just fine well gave me a confident boost.
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By *loydyMan 6 weeks ago
British |
"So I've had psoriasis since I was 5, but it has never been as that bad until about 4 years ago. On another biologic to see if it works 🤞🏻
Be keen to hear from anyone else who has it what they are on/has tried and helped.
Also, how has your psoriasis and/or psoriatic arthritis affected your swinging? I get really self conscious when the flare up is bad. "
skin so soft avon |
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My psoriasis started in my late early 30's. My 'luck' was that my wife's father had psoriasis and was familiar with it and incredibly supportive.
From being an active (professional) dancer and swimmer, it totally broke my self esteem - no more taking shirt/clothes off in public, no more fun.
Dermatologist after Dermatologist, tried all the prescribed routes, coal tar, cortisone creams, meds. Methotrexate had some success except it made me have suicidal thoughts that were far to real for my likings that I stopped them completely.
4 years ago I started a biological injection called Skyrizi. One every 3 months. Noticed an improvement after a week, mostly clear (from 70% coverage) after a month and fully skin clear by month 2. Nails took a very long time to repair, but that didnt bother me.
The feeling was surreal and took several months to get used to the fact that I wasnt itchy, or in pain, that my skin wouldnt rip open if I bent over, that I wasnt bleeding in the bed, dropping scales everywhere. Its actually frustrating to think that I had suffered for so long, and how much of a negative impact this had on my life.
My heart bleeds for other sufferers. I know where you are and I know how it feels. There is a solution out there and I wish you all the ability to find it.
I know desperate people try to find solutions anywhere they can. The major thing that I am deadset against is cortisone and anything with it in it. While it may take away the patches, they will return double the size they were before.
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ive had it for 40 years now
hated it as a kid
its easier for a guy to live with than a woman.
was at its worst when i was smoking and drinking as a young man, now at 49 not smoking, eating better and barely drink its very manageable, hardly noticeable really |
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"When the liver is congested it's unable to do its job properly, including keeping the lymphatic system clear. There are many things the medical industry don't tell, they would loose customers if they did. Just because they haven't mentioned it doesn't mean it doesn't work does it? I used to get patches on my chest, legs and one arm, all gone, my daughter no longer has eczema which she's had since a child. It's up to you, keep listening to your GP etc that's obviously helped so much that your all taking pharma medication that isn't working and your all moaning about side affects. The liver and gall bladder flush uses no medication. Enjoy your suffering. "
Where’s my tinfoil hat ? |
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Had it since I was 16. Now 43. So it’s been a tough thing to deal with. Although now I’m older I’m not that bothered by it.
Tried UV chambers for years.
Currently on methotrexate (week 10) it’s certainly helped reduce scaling but the red patches are still there.
On to the next one I guess.
Heard injections were supposed to be really good. |
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